Monday, 7 April 2014

This is who I am...

So this is my first ever blogging post and I am not sure what to do or what to say, however here goes...

My name is Hannah, I am 29 and have fibromyalgia. Although I don't want to go on about my disability, it is part of my life and will inevitably get in the way of what I do in life. I struggle with it, but what person wouldn't. I am constantly in so much pain and always exhausted, so sleep a lot and am unable to do very little. 
I could go on and on about how bad it is, however I am also grateful for it in some ways. It has made me who I am today and I love to laugh and have a smile on my face. I would probably never have had the experiences I have had, if I never had it. My modelling and acting is a case in point. Although it has hindered me in many ways, I have been able to be the lead role in a feature film and many short films, as well as take on some great modelling experiences (I will share some of these at some point). 

Currently I do not have a job, I am not a scrounger or someone taking the mickey with the welfare state. I simply am unable to work, due to the pain, exhaustion and many of the other hideous symptoms that this condition throws at me. A lot of the time, I cannot walk, communicate properly and even using my hands/wrists can get so painful I cannot use them. So how come I am writing this, well I needed something to distract me, an outlet and something positive to focus on, I will deal with the pain afterwards. Don't get me wrong, I would LOVE a job, and I really truly miss working, I just am unable to keep a job due to the uncertainty of this condition.

I love creating art and this blog was initially set up to try and help me promote my work, however who knows where this blog will take me. I have had help from my wonderful fiance Chris (my rock), he is very creative too.  Together we create 3D pieces of work using butterflies, or other shapes too. Ok maybe I am biased, but I think they are beautiful and again they are something positive for me to focus on. I love creating art/crafts and like taking on new projects, ok they take time to produce due to the pain, but it is worth it!



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